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Are you living with a mitochondrial disease? Improve Care - Support Research - Stay Informed

Consider enrolling in the MitoCanada Patient Contact Registry!

  • - Control who can access your information
  • - Takes less than 15 minutes to complete

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FAQ

WHY SHOULD I PARTICIPATE?

You will be able to participate in research, help attract clinical studies and support advocacy initiatives.

WHO CAN PARTICIPATE?

Anyone living in Canada with a mitochondrial disease can participate in the registry. Registration is voluntary, confidential and free of charge. You can opt out anytime.

IS MY INFORMATION SECURE?

Your information will be stored in a medical-grade data collection platform. In addition, you decide who can see this information and use it.